In-Home Care Guides

New York State Guide for Medicaid Waivers/HCBS Care Coverage for Peace of Mind

Explore options for in-home dementia care and learn how New York’s Medicaid waivers and HCBS can provide support and improve daily living for your loved ones.

Estimated Reading Time

15 minutes


Last Updated

Apr 12, 2025

Tendly Home Key Takeaways

TLDR: Overview of New York's Medicaid waivers and HCBS for in-home dementia care:

  • 🏡 Home Care Options: New York offers various support programs for in-home dementia care, enhancing quality of life for your loved ones living with cognitive impairments.

  

  • 💰 Medicaid Waivers: Medicaid waivers in New York provide financial assistance for necessary home care services, making it easier for families to access essential support.

  • 📑 HCBS Benefits: Home and Community-Based Services (HCBS) help individuals remain in their homes, promoting independence and reducing the need for institutional care.

  • 🧑‍⚕️ Eligibility Criteria: Eligibility for Medicaid waivers and HCBS often requires a functional and financial assessment, ensuring tailored assistance based on individual needs.

  • 📞 Getting Started: Understanding the application process and available resources is crucial; families are encouraged to reach out for guidance in navigating the state's Medicaid system.
Contributors
Alan Lee
Geriatric Specialist
Emily Sanders
Dementia & Chronic Illness Navigator
Maria Torres
Clinical Social Work

When a loved one is diagnosed with dementia or another disabling condition, it brings a host of emotions, challenges, and urgent questions. One of the most immediate concerns many families face is: How can we afford quality in-home care that preserves their dignity and comfort? Fortunately, New York State offers a range of Medicaid waivers and Home and Community-Based Services (HCBS) designed specifically to help families manage care at home instead of turning to institutional settings. These programs can be a lifeline—both financially and emotionally—offering peace of mind and real support during an overwhelming time. This guide aims to help you understand these offerings, explore how they work, and determine how they can help your family navigate long-term care in a compassionate, cost-effective way.

Medicaid waivers and HCBS programs are essential tools designed to provide alternatives to institutional care, especially for older adults and individuals with disabilities, including those living with dementia. Standard Medicaid often covers nursing home care, but what happens if your loved one prefers to remain at home—surrounded by familiar sights, sounds, and people? That’s where Medicaid waivers come in.

Under federal law, states can “waive” certain Medicaid rules to offer more customized services through Home and Community-Based Services. These waivers allow states to use Medicaid funds for care in personal residences or community settings rather than hospitals or nursing homes. New York, known for its robust Medicaid infrastructure, offers several such waivers.

Two of the most commonly used are the Managed Long-Term Care (MLTC) program and the Nursing Home Transition and Diversion (NHTD) waiver. These programs cover a wide range of services, from skilled nursing and personal care assistance to home modifications and transportation—and often at little to no out-of-pocket cost for eligible individuals.

Why do these waivers matter? Because they empower families to design a care plan tailored to their loved one’s unique needs, preferences, and routines. They ensure that a diagnosis doesn’t automatically force a move into a nursing home, preserving familiarity and autonomy for as long as possible. With the right waiver, in-home dementia care becomes not just available, but sustainable.

Moreover, these programs don’t just benefit the cared-for—they relieve caregivers, too. Knowing that there are qualified aides, adaptive technologies, or even respite services in place can be the difference between burnout and balance. Understanding and applying for the right Medicaid waiver is step one in transforming a family crisis into a manageable care plan.

One of the most common points of confusion around Medicaid waivers and HCBS in New York is understanding eligibility. The application process can feel like a maze—but once broken down, it becomes far more approachable.

First, financial eligibility. Medicaid is income- and asset-based, meaning applicants must meet strict limits. As of 2024, the income eligibility threshold for an individual applying for long-term care Medicaid in New York is approximately $1,732 per month, with asset limits generally capped at $30,182. However, don’t let numbers alone discourage you. Through strategies like spousal refusal or creating a Qualified Income Trust (QIT), families can often manage their finances to meet these requirements.

Next comes clinical eligibility. Individuals must need a level of care typically provided in a nursing home. This is assessed through a Uniform Assessment System for New York (UAS-NY) evaluation conducted by a nurse. Those diagnosed with Alzheimer’s disease, vascular dementia, or other cognitive impairments frequently meet this criterion because they require daily assistance with activities such as bathing, dressing, mobility, and medication management.

When it comes to enrollment, it varies by program. For example, the Managed Long-Term Care (MLTC) program usually starts by contacting New York Medicaid Choice, a state-affiliated service that guides applicants through plan selection and enrollment. In contrast, the NHTD waiver is not operated through managed care; it requires outreach to the regional waiver office to start the intake process.

The paperwork may be extensive—financial documentation, medical reports, proof of residence—but it’s worth the effort. Many families find that consulting with a Medicaid advisor, social worker, or elder law attorney can be invaluable during this process.

One crucial piece of advice? Start early. Don’t wait until your loved one is in crisis. Delays in processing can take weeks or even months, particularly when transitions from hospitals or rehabilitation centers are involved. Once enrolled, your loved one can start receiving services like home health aides, social adult day programs, or even specialized dementia care interventions—all designed to help them thrive where they feel most at peace.

Understanding what services are actually covered under New York's Medicaid waivers and HCBS programs can help you create a care plan that addresses both short-term needs and long-term goals. These offerings are impressively comprehensive and often customizable to match the individual's cognitive and physical requirements.

One core benefit is access to in-home personal care aides, who assist with activities of daily living like bathing, grooming, meal preparation, and ambulation. For dementia patients, the continuity and familiarity of consistent caregivers can be especially important in reducing confusion and promoting emotional safety.

Moreover, care plans may include skilled nursing services for medical conditions, medication management, and wound care, delivered directly at home. This can reduce the need for hospital visits—something that often proves disruptive for individuals with cognitive impairment.

Another critical offering is respite care, which provides temporary relief for primary caregivers. Whether it’s a few hours a week or a short-term stay at an assisted facility, respite ensures caregivers avoid burnout, safeguarding both their health and the quality of care provided.

Specialized day programs are another option. Services like Social Adult Day Care or Memory Care Adult Day Programs offer structured environments where individuals receive supervision, engage in therapeutic activities, and build connections. These environments can help slow the progression of cognitive decline and reduce feelings of isolation.

Additionally, HCBS funds may cover home modifications—like installing grab bars, stair lifts, or medical alert systems—to make the home safer and more navigable. Transportation assistance is often included as well, ensuring older adults can attend doctor’s appointments, therapy sessions, or community events.

For those managing complex needs, case management services are hugely beneficial. This involves a dedicated professional overseeing and coordinating all aspects of care, from medical appointments to in-home services, aligning family goals with clinical needs.

Importantly, covered services are not one-size-fits-all. Clients undergo periodic assessments to adapt care plans based on evolving needs. For example, if behavioral issues related to dementia become more pronounced, the plan can shift to include behavioral health support or memory-care-trained aides.

In real-world terms, this kind of support means fewer unnecessary hospital admissions, improved quality of life, and safer, more connected living environments. It also means that the burden on family caregivers becomes a shared responsibility—giving them room to breathe, grieve, and heal.

Learn more about Tendly Home and our mission to empower families in transition
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For many New York families, the journey from confusion to clarity begins with one pivotal insight: You don’t have to do this alone. Whether you’re caring for a parent with vascular dementia or a spouse with early-onset Alzheimer’s, Medicaid waivers and HCBS programs offer more than just financial relief—they offer a support system.

Take Linda from Buffalo, for example. When her mother began forgetting stove burners and misplacing her medications, Linda knew it was no longer safe for her to live alone. But the idea of putting her mother in a nursing home felt like giving up. Through the NHTD waiver, Linda was able to install door alarms, schedule daily visits from a home health aide, and enroll her mother in a local adult day program. “It gave us our lives back,” Linda says. “I could work, sleep, and feel confident my mom was okay.”

Or consider Raj in Queens, who noticed his father’s dementia symptoms progressing rapidly. As an only child, he bore the weight of caregiving and financial decisions. After applying for MLTC, Raj was paired with a care manager who coordinated physical therapy, medication delivery, and weekly respite care services—all funded by Medicaid. “It let me be his son again, not just his caregiver.”

Stories like these aren’t rare. According to the New York State Department of Health, over 200,000 individuals receive long-term care services in the community through managed care plans. The state’s proactive approach to elder care means residents have more opportunities than ever to age in place with dignity.

The first steps are crucial: get informed, gather documentation, and reach out to resources like Medicaid planners, elder care attorneys, or local nonprofit organizations that specialize in long-term care navigation. Even if the process feels daunting, each step forward is an act of love and advocacy.

Ultimately, these programs don’t just extend lives—they improve them. They keep families together, empower caregiving, and honor the humanity of every individual living with dementia or disability. Peace of mind isn’t just possible—it’s achievable, and it starts with understanding what support is available.

The path to securing quality in-home care for a loved one with dementia can be emotionally and logistically demanding—but New York State's Medicaid waivers and HCBS services make that path easier, more affordable, and profoundly more humane. These programs reflect a shared commitment to dignity, independence, and family-centered care.

By understanding how to access them and what they offer, you can transform overwhelming uncertainty into a plan rooted in compassion and strategy. Whether you’re just starting to explore care options or navigating daily responsibilities as a primary caregiver, know that support exists.

You’re not alone—and with the right tools and resources, you can provide safe, comfortable, and meaningful care at home.

Don’t wait. Take action today: Reach out to Medicaid offices, speak with a care planner, or consult a professional. Your loved one deserves the very best—and so do you.

Frequently Asked Questions

What are Medicaid waivers in New York State?

Medicaid waivers in New York State are specialized programs designed to provide home and community-based services (HCBS) to individuals with disabilities and chronic illnesses. These waivers allow states to use Medicaid funds more flexibly, enabling individuals to receive care in their homes or communities rather than institutional settings. This approach aims to enhance the quality of life for participants while fostering independence and dignity.

What are the eligibility requirements for Medicaid waivers?

To qualify for Medicaid waivers in New York, applicants typically must meet specific criteria regarding income, assets, and medical need. Generally, participants must demonstrate a significant disability or health condition that necessitates HCBS. Additionally, financial eligibility usually aligns with Medicaid's standards, which involve income limits and resources that can vary based on family size and circumstances.

What types of HCBS services are available?

Home and Community-Based Services (HCBS) in New York offer a variety of supports aimed at assisting individuals with daily living. Services may include personal care assistance, habilitation, respite care, and therapeutic services. These supports enable individuals to manage their own care, helping them stay in their communities while receiving the necessary assistance to maintain independence.

How do I apply for Medicaid waivers?

Applying for Medicaid waivers in New York involves several steps, including assessing eligibility, gathering necessary documents, and submitting an application. It's recommended to contact local Medicaid offices or a dedicated enrollment specialist for guidance through the process. Proper documentation of medical needs and financial information is crucial for a successful application.

How often do Medicaid waiver services need to be renewed?

Medicaid waiver services typically require periodic reassessment to ensure continued eligibility and need for support. In New York, waiver participants often undergo an annual review to confirm that their health status and service needs remain consistent. This renewal process helps agencies determine ongoing eligibility and adjust services as necessary.

About the Contributors
Alan Lee
Geriatric Specialist

Dr. Alan Lee is a board-certified geriatrician specializing in neurodegenerative conditions including Alzheimer’s disease, Parkinson’s, and Lewy Body dementia. With more than two decades in clinical practice and research, Dr. Lee is a trusted authority in personalized care planning for aging adults. He serves as a medical reviewer for several national caregiving organizations and frequently lectures on aging in place and ethical dementia care.

Emily Sanders
Dementia & Chronic Illness Navigator

Emily Sanders is a Dementia Practitioner and educator who trains in-home caregivers and family members in person-centered dementia care. With a background in occupational therapy and caregiver training, Emily creates practical tools and care plans that improve everyday life for people living with Alzheimer’s and related conditions. She is passionate about preserving identity, dignity, and connection in home-based settings.

Maria Torres
Clinical Social Work

Maria Torres is a social worker with a focus on elder care, family systems, and caregiver mental health. She has worked in both hospice and community health settings and currently supports family caregivers navigating long-term care decisions. Maria brings an empathetic lens to her writing and advocates for proactive planning, emotional resilience, and equitable access to home care resources.